Sunday, January 26, 2014

checking in!

First I need to boast, though most of you that follow this blog already know, but my girl Bella won the hoop shoot free throw competition for our district on Saturday, and has moved onto the state finals next weekend!  We are so proud of her!


Today we got a chance to visit and spend some time with our amazing little "great" nephew, Philip.  Those of you close to me know that he recently underwent surgery to remove a brain tumor.  He is recovering well, and back to his cheerful, silly, wonderful little self. Children are so resilient, and they amaze us day in and day out!  We continue asking for positive thoughts and prayers for him!



the craziness of life has taken over! Along with working a few days a week, and raising our adorable new puppy Stella, there is Softball, soccer, baseball, hockey clinic.  Just a few of the things that I need to be ready and able as much as possible for.  So I can't let RA/PsA get me down!  I am feeling much the same, probably a little worse.  I am suffering daily ankle pain, as well as continued pain in my left foot.  A new "pain" has set in recently, a shooting pain down the side of my left leg.  Back pain is a daily thing, and I have recently seen a specialist, and have had both an MRI on my neck and spine.  My back pain is not all related to RA/PsA, so time to get some answers!  

Most of you may remember that I started to write in this blog again, just over a year ago after a scare immediately following my first mammogram.  I went through the roller coaster ride of waiting for test results to find out if the tumor they found was benign, or cancer.  Benign it was, but it was still being monitored every 6 months because with the kind of tumor it was, growth was inevitable.  I went back last week for my yearly mammogram, and 6 month ultrasound, and though my mammogram thus far has come back clear, I have found out that the tumor has grown.  With the last year being a whirlwind of nothing less than horrible events, and my mother being diagnosed with breast cancer in the thick of it all, I have decided to undergo a lumpectomy.  I will have surgery in early March, and have the tumor removed.  It wasn't an easy decision to come to.  After seeing my surgeon, and going through my recently changed family history, we have discovered that I am now a candidate for further screening - we have also discovered that I have a 24% chance of getting breast cancer, that's 1 in 4 chance people!  So along with a yearly mammogram, I will be having an MRI.  This MRI will pick up anything that mammogram may not, and though the chance of false positive cancer diagnosis is there, my surgeon has assured me that anything that does come up, will be removed and biopsied.  We are hoping to get this done in the next couple of weeks, before my lumpectomy, so that if anything comes up, we can take care of it during my scheduled surgery.    So again, I put it out there to all of my friends, if you are in your mid thirties, or have a family history of breast cancer, please, GO GET A MAMMOGRAM.  Early detection saves lives.  It could be be mine, or it could be yours! 

Until next time, be well!
mb

Saturday, January 4, 2014

This is how I spend my Saturday night....

......so I can walk from Sunday - Friday! (I limp around from Thursday -Saturday, with nausea on Sunday and Monday, usually TMI on Tuesday* and exhaustion at its worst on Tuesday and Wednesday!) 
 
That's a host of medications, two of them being injections.  3rd week of the Enbrel injection.  Praying, (and lately I'm not a girl of prayer!) that it starts working!  I've taken myself almost completely off the steroid, as well as the sulfa med, with hopes if remission soon!!!  

*TMI is code for something 😜

Sunday, December 29, 2013

Oh Stella, you are definitely meant to be in this family!!!

Yesterday while visiting family, our little Stella was out playing with the kids when she slid on some snow, fell over and then proceeded to not be able to walk!  I was able to touch/rub/check all of her, and it appeared nothing was  wrong, but it was as if her right front leg was out of its socket or something but there was no crying, nothing, unless she tried to walk.  Steve and I took her to the vet ER  (yes, they have them!!) close to my sister in laws house, where I had visions of humongous vet bills, doggy surgery, broken legs, etc. and after an hour wait (nap for Stella!) I brought Stella out to pee, placed her in the grass fully prepared to hold her up if need be- and she was able to both stand up, and walk with a slight limp.   We waited to see the dr and just be sure all was ok.  The dr says it was quite possible that her shoulder could have came partially out of her socket, and we could've  popped it back in when we checked her out ourselves.  


Steve and I laughed after, we were like two parents of a brand new baby.  I almost felt foolish for bringing her in, but with three devastated kids left back at my sister in laws, there was no way we weren't getting her checked!  Thankfully, all is ok, and Stella is supposed to " take it easy" the next couple of days! 



Here is a pic of Stella, lazily napping in the puppy ER!  


Proven yesterday, Stella belongs in this family, with a visit to the ER in her first 10 weeks of life! ;)

Wednesday, December 11, 2013

Winter blues....

...they can't get me down!   At least, I will try to not let them!  On a day where I have every hour scheduled, I wanted to take just a moment to check in.  I have been frantically running around the last few days, trying to get things set, so I can head off for a long weekend away in Florida, a chance to root on our boys, The Patriots, as they squish the fish on Sunday! I can't wait for some fun in the sun, and some warm air on my sore achy joints!   I am actually here to complain a little...what other mom friends will sympathize with, my husband does not !  What he is not realizing is that in order for us to get away this weekend, I need to have so many other things lined up!  Setting up a babysitter, making sure there is food in the house, lining up rides, and school, and drop offs, and pick ups, doing laundry, not just for the kids, but for us to pack, (you think He is capable of doing that himself???), and lets add on the fact that Christmas is in about 12 days or so, and I have to shop, wrap, hide, and also the Christmas Party we are hosting the weekend prior...no problem to cook, clean, organize and be calm so you can entertain 75 people in your home...no problem at all for a person who has no strength in her hands, has days of pain and weakness, and who has bouts of nausea and all the other "fun" stuff that goes along with a completely invisible, debilitating disease!  Don't get me wrong, I am looking forward to every last minute of it all, and I work best under pressure, if I do say so myself! But just for once, I would love it if my husband showed me the empathy that I get from others...I'm not in no way badmouthing him, I am just wishing he would "get it"!

Next Week is crazy as hell as well!  I am scheduled for a bone density, nurse appt to "learn" how to give myself my newest injection, as well as an appt with my Rheumy. - all in the same day.  Why I thought it was a good idea to schedule it the week before the kids get out on winter break, the week I have to pick up my son from college to come home for the holidays, the week that my kids have holiday shows, xmas parties, and all that fun stuff...I have no idea why I thought that was a good idea, BUT - I am looking forward to the next step, starting a biologic, along with my MTX (chemo shot) - and praying to find some relief and kick some RA ass! 

SO, if I do not get back online, to blog, post on FB, or any of that other stuff, I just wanted to wish everyone a very Merry Christmas with their loved ones! 

Be well,
xo MB

Monday, November 11, 2013

It's been a minute..

...or two since I last checked in!  Happy to say, I am alive and doing what I would think is pretty well.  I took a bit of a hiatus from bitching and complaining, because honestly, I was sick of hearing myself! It's been a rough year for me and my family, things have happened that sometimes I find myself sitting and thinking, "Is this really my life?  How did I get here?"  It just seems that it has been one bad thing after another, and if you've ever been faced with a similar situation, you know as well as I do, people really don't want to hear about it, so that is usually when I take a step back!  

So - Here I am after two nights or barely any sleep, on the cusp of thinking that MTX is finally working for me,  when I realize I am definitely keeping my appointment with my Rheumy-NP this week.  I am ready to try something new.  I am really ready to dive in, and move past this time in my life.  I hit a bit of a bump about a month ago, and had some other health issues come up. I have been back and forth to appointments between different doctors, blood labs, etc.  I am really ready to feel good again!

The Holiday season us upon us, and we all tend to get lost in the hustle and bustle of busyness of it all, this year I am going to be sure to take the time to be grateful for all that I have, and forget about all the other stuff that brings me down - if you have similar struggles, I hope you get a chance to do the same.

Happy Veteran's Day to all, and though I think it's not enough; I say thank you to those who have, who will someday, and who are out there right now - fighting for our freedom, a million times, thank you!


Until next time, be well!
mb

Friday, October 11, 2013

Mid flair..

Mid flair fever!  So along with pain, and all the other crap- the feeling like I am burning up! Good times! 

Wednesday, October 2, 2013

Race for a Cure - Done!

Love my girls!

Me and my sisters! <3 p="">
 
 
Our "team" raised over $3,700 with donations still coming in..all walking for the same reason - to support mom! 

Mom in the middle, surrounded by all of us in this fight with her!
 

 <3 p="">

I can't say enough, how proud of my kids I am.  To be dedicated to a cause, and helping others! 

With Grammie - my kids would do anything for her!
 

They are in this together - walking, running, whatever...together!

When my girls saw the roses at the finish line, they had to get some for Grammie!
 
 
 
I know I have thanked everyone, but I can't say it enough!  The support we received from our friends has been astounding!  We have all discussed, and agreed that it's an eye opener. Those you expect the support from, don't always pull through, and then those you least expect it from, pay it forward without a second thought.  We are so blessed to have such good people in our lives!
 
Next year , we run!  This weekend's Race for a Cure was the start of a tradition.
 
Everyday there seems to be new news of someone I know who has been diagnosed.  Cancer, in any form, does not discriminate.  I stand with my best girlfriends every morning, and we look around and wonder if one of us will be next.  I will continue to do what I can, to help raise funds and awareness, until there is a day when I don't need to worry for myself, my mother, my sisters, my daughters, and my friends.  Someday there will be a cure!